Karyn recommends the article, “When MS Means Mighty Stubborn” by Cheryl Ellis on Caregiver.com. If you have struggled with your loved-one’s desire to remain independent and your desire to maintain their health through preventive measures, this article will be of interest.
“Both caregiver and patient have heard the phrase ‘you are not MS’ repeatedly. An unfortunate truth is that while the individual is not the disease, the disease affects their body and often rights of choice,” writes Cheryl Ellis. “Caregivers have been given custody of their loved one’s trust in addition to handling various affairs, but the original relationship between the MS patient and the caregiver remains. Remembering that relationship and putting it first, both verbally and by action, can offer an independence for caregiver and loved one.”
While the article specifically addresses the relationship between someone who has MS and their caregiving loved-one, the article offers communication tips to negotiate the tasks that a carepartner and caregiver does.
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